Written November 23, 2012
(See bottom of the post for update)
We are specifically writing
to inform some of you and to catch others of you up to speed on Caleb, his health, our family and
decisions we are in the process of making concerning all three…
Over the past several months we have had serious concerns
about Caleb’s health over the past several months. In May just before we were Stateside for the
weddings Caleb had what we thought was a reoccurrence of Bilharzia symptoms- rash,
high fevers and joint pain. He was given the treatment and we left for
California. He felt better for a few weeks but in June the symptoms were back.
After visits to more than 1 doctor he was treated for “tick fever” and then loosely
diagnosed with Reiter’s Syndrome or Reactive Arthritis brought on by an
infection either viral or bacterial. The treatment for this was a high and long
regimen of prednisolone. Over the past several months he has tapered off of the
steroid three times only to have a relapse or “flare up” of the symptoms again
and again.
The most recent flare up with symptoms including fevers,
(reaching 104.9), severe joint and muscle pain (to the point that several times he was unable
to walk), brought concern that perhaps
this was not the right diagnosis and so he was tested for another suspected
cause… brucellosis (bacteria acquired from cattle, beef or milk). The initial test
came back negative but the doctor sent his blood to a lab in S. Africa to be
tested again with more sophisticated equipment. Not wanting Caleb’s condition to worsen while waiting
for the test results, he started Caleb on the treatment anyway. After three
days of treatment Caleb was in fact getting worse rather than better and so he went
back to the doctor (Monday). Another practicing physician at the medical center
checked Caleb out and believes that he has Still’s Disease. A diagnostic type
test was done on Caleb’s blood and there is ample evidence to diagnose him with
Still’s Disease.
Caleb has been taken off of the medications for treating
brucellosis and is back on a high dose of prednisolone. However this past week has
still been rough. Caleb had not been able to sleep for six nights straight because
the fevers and joint pains were so intense. Thankfully last night he was able
to get almost four hours of sleep! The diagnosing doctors have recommended and
the leaders here at New Hope as well as our family in the States agree that it
is in Caleb’s best interest to return to the States in order to get treatment,
learn to manage his disease and to fully recover. We are praying that fevers
will subside in the next few days so that he will be able to travel. Please
pray with us. Plane tickets for the entire family to go to California are on
hold for Wednesday the 28th and will be purchased on Monday if Caleb
is feeling well enough to fly.
Our adoption process
(the timing of finalizing the adoption and pursuing immigrant visas for Nico
and Nate)…
We spoke with our attorney who informed us that the judge
that heard our case and who would grant the adoption order has extended his two
week leave to four weeks. In actuality his leave will extend through January
because the court system in Uganda recesses for holiday (mid Dec. - mid Jan.).
This means that we will not have a ruling until sometime in Jan. or possibly
Feb. Our lawyer reassured us that we do not need to be present for the ruling
and that he will file all necessary finalization papers with the ministries we
are required to here in Uganda to do so with and then will send the final court
orders to us in the U.S. We also spoke with the U.S. embassy in Kampala and
were told that we are able to file for immigrant visas while the boys are in
the U.S. on visitors visa’s (which expire in June 2013) as soon as we have our
adoption finalized.
We have been continually reminded by many of you and by the
Spirit of the living God himself that there is joy in His presence and it is His
presence that we are seeking!
Celebrating Nathaniel Mitchell
Thank you for your prayers, counsel, encouraging texts,
phone calls, meals, and for watching our kids while we’ve been ferrying to and
from the doctor!
The
Mitchell’s
Update November 27,
2012
This is just
a quick update on Caleb and what has been planned for our departure.
We have not
tried yet to board any flights to America as we had initially planned because
Caleb was not feeling up to making the trip.
After a
conversation with a pharmacist in the States, Caleb began raising his
prednisone dose from 90 mg to 110 mg on Monday morning after a long night of
high fevers (40.8 C/ 105.5 F). Last night (Monday) Caleb's fever came again reaching
the same temperature and he therefore increased his dose of prednisone to 130
mg this morning. We hope that he will not have to up the dose again, but if the
fever persists he will taper up to 150 mg then consult the pharmacist about how
to proceed from there. We are now awaiting confirmation on tickets to fly out
of Entebbe on a commercial airline flight on Friday. This morning we received
word that in addition to purchasing the tickets for our family's flight, one of
our supporting churches, is sending Caleb's cousin J.T. King and possibly their
Global Ministries pastor, to Uganda to assist us with the trip to the US. This
decision was one the church made in efforts to fully support us and we receive
it a blessing and tangible provision from our Father God.
I (Alair) am
on day two of malaria treatment and should be feeling better soon. The boys are
doing well and as of now are viewing all of this as a great adventure- which is
probably a very good way to walk through life with our God isn't it!?!
Please
continue to pray…
That “he will
have no fear of bad news; that his heart is steadfast, trusting in God.” Psalm
112:7
That we will
“… fix our thoughts on Jesus…” Hebrews 3:1
That we will
“Hope in God” and “praise Him for the help of His presence.” Psalm 42:5
That we will
cling to the truth that…
“The Lord is
near to all who call upon him, to all who call on him in truth.” Psalm 145:18
“For He
Himself is our peace…” Ephesians 2:14
“He is
Immanuel…” “God with us” Matthew 1:23
Thank you for praying,
Alair for the Mitchell family
3 comments:
I will be praying for both you and your husband. I'm so glad I found your blog! I hope the upcoming travel will prove to be fruitful and beneficial.
Jennifer Morrissette (Brunson)
you are invited to follow my blog
HELLO,
i am a native american and have A different perspective on religion. i did not celebrate thanksgiving but used it as a day of contemplation on the nature of history.
i note the courage that you have chosen and the suffering that young caleb must endure.
we would say in our belief system that all is before us, it is just that we cannot see. you must see the causes,
the run of time, the beauty of all of this and the creator of all of this will give you a way to see your road because of your courage and the strenght of young caleb.
i pray in my way for you. you are fine people and you must overcome in the end. this is the way of this world.
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